Vasculitis Visionaries

• Episode 19: CARRA and Building a Pediatric Vasculitis Website with Dr. Linda Wagner-Weiner

  In VF's Vasculitis Visionaries' nineteenth episode, Ben is joined by Dr. Linda Wagner-Weiner, a Chicago-based pediatric rheumatology expert who is currently leading the construction of a brand new website devoted entirely to patients (and their families) with pediatric vasculitis. Listen in to learn about the challenges of building an all-encompassing website from scratch, her perspective on the evolution of vasculitis treatment throughout her 40 year medical career, and more.

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• Episode 18: Pediatric AAV with Dr. Jessica Bloom

  In VF's Vasculitis Visionaries' eighteenth episode, Ben and Kaley are joined by Dr. Jessica Bloom, a pediatric rheumatologist and assistant professor of pediatrics at University of Colorado School of Medicine. The first pediatric rheumatologist to be selected for the VCRC/VF Fellowship, Dr. Bloom focuses on advancing evidence-based management of AAV in children. Listen in to learn about her ongoing collaborations, vasculitis mentors, and plans for the future of pediatric vasculitis treatment and research.

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• Special Episode: Best of Vasculitis Visionaries Podcasts, Season 2

  Ben and Kaley will return with a new Vasculitis Visionaries episode in September. This is a special edition featuring a compilation of interview segments from Season 2 of the series. They have selected some of the most exciting, engaging, and informative highlights from past episodes. Guests include Dr. Velma Mockett, Kalen Young, Dr. Leonard Calabrese, Dr. Sebastian Sattui, and Dr. Aurora Fifi-Mah.

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• Episode 17: Patient Education and Vasculitis Registries with Dr. Aurore Fifi-Mah

  In VF's Vasculitis Visionaries' seventeenth episode, Ben and Kaley are joined by Dr. Aurore Fifi-Mah, a clinical associate professor with University of Calgary's Division of Rheumatology in Alberta, Canada. A vasculitis researcher and patient advocate, Dr. Fifi-Mah has collaborated with and/or cofounded many organizations, including the Calgary Vasculitis Association, the Caribbean Association of Rheumatology, and the Vasculitis Clinical Research Consortium (VCRC). She's studied the adverse effects associated with immunotherapy and advised vasculitis patients on timing their COVID-19 vaccinations around their immunosuppressive treatments. Tune in to learn more about her patient advocacy and education, as well as the use of patient registries in vasculitis research.

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• Episode 16: Multidisciplinary Collaboration and Vasculitis with Dr. Sebastian Sattui

  In VF's Vasculitis Visionaries' sixteenth episode, Ben and Kaley sit down with Dr. Sebastian Sattui, the soon-to-be co-lead of the University of Pittsburgh Medical Center (UPMC) Vasculitis Center. Currently finishing up a vasculitis fellowship at the Hospital for Special Surgery in New York, Dr. Sattui was the recipient of the 2019 Vasculitis Clinical Research Consortium (VCRC)-Vasculitis Foundation Award and has collaborated with the VPPRN as the PI for numerous research initiatives. Tune in to learn about his COVID-19 research with the Global Rheumatology Alliance (GRA), the VascStrong study on preventing patient frailty, and his motivation behind his work. You can follow Dr. Sattui on Twitter at @SattuiSEMD.

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