The Caregiver's Journey

“I don’t think any of us should be trying to assist a person with dementia without first walking in their shoes.” — PK Beville, Ph.D.

Have you ever wondered what it actually feels like to live with dementia? Do you find yourself struggling to understand why your loved one behaves the way they do, wishing you could see the world through their eyes- even for a moment? There’s a powerful tool that can help you do exactly this.

We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we know how much empathy and understanding matter in day-to-day care. We’re sharing insights today from PK Beville, Ph.D., founder of the global nonprofit Second Wind Dreams® and inventor of the Virtual Dementia Tour, a simulation experience that has changed how nearly five million people worldwide understand and care for people living with dementia.

If you’re following along with the Navigating Dementia Caregiving Roadmap, this is part of Step Seven — educating yourself. You can find the full roadmap as an interactive page on our website at thecaregiversjourney.org. Steps one through six help you build your foundation right after a diagnosis. Steps seven through ten are about deepening your understanding, and the Virtual Dementia Tour is one of the essential resources we recommend in this phase.

Let’s explore three essential tips — from understanding what the Virtual Dementia Tour is, to applying what you learn at home, to finding one near you.

Connect with us and share your tips:

Website: https://thecaregiversjourney.org/
Donate: https://give.cornerstone.cc/thecaregiversjourney
Instagram: https://www.instagram.com/thecaregiversjourney/
Facebook: https://www.facebook.com/thecaregiversjourneys/
Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/
Email: [email protected], [email protected]

Full Show Notes

https://thecaregiversjourney.org/62-what-is-a-virtual-dementia-tour-three-essential-tips-alzheimers-and-other-dementias/

Additional Resources Mentioned

Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney
Second Wind Dreams: https://secondwind.org/
The Caregiver’s Journey Navigating Dementia Caregiving Roadmap: https://roadmap.thecaregiversjourney.org/ Available as an interactive page on our website that walks you through the three stages of your dementia family caregiver journey. Includes the option to download the guide for free.

Takeaways

We shared 3 tips:

Learn what happens in a Virtual Dementia Tour
Apply what you learn at home
Find a virtual dementia tour near you

Read More in This Blog

https://thecaregiversjourney.org/62-what-is-a-virtual-dementia-tour-three-essential-tips-alzheimers-and-other-dementias-2/

WOOP is a very practical technique for anything from emotions to something on your to-do list — it can be used for many different kinds of wishes." — Donna Fedus

How many times have you been told that taking care of yourself is really important — and felt overwhelmed just thinking about it? You are not alone in this struggle, and there is a simple, evidence-based process that can help.

We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer's and other types of dementia, we understand how hard it can be to find time — and energy — for your own wellbeing. We are sharing insights from Donna Fedus, gerontologist and founder of Borrow My Glasses, about an evidence-based process called WOOP — yes, WOOP — and how it can help caregivers turn their wishes into reality.

Donna has been a gerontologist for 35 years and a dementia educator for nearly 20. She founded Borrow My Glasses in 2013 and has been instrumental in bringing WOOP to dementia family caregivers through a nationally funded study conducted with Yale University.

Let's explore three essential tips for putting WOOP to work in your caregiving life.

Connect with us and share your tips:

Website: https://thecaregiversjourney.org/
Donate: https://give.cornerstone.cc/thecaregiversjourney
Instagram: https://www.instagram.com/thecaregiversjourney/
Facebook: https://www.facebook.com/thecaregiversjourneys/
Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/
Email: [email protected], [email protected]

Full Show Notes

https://thecaregiversjourney.org/61-turn-your-wishes-into-reality-three-essential-tips-alzheimers-and-other-dementias-2/

Additional Resources Mentioned

Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney
Donna Fedus at BorrowMyGlasses https://borrowmyglasses.com/
The Caregiver’s Journey Navigating Dementia Caregiving Roadmap: https://roadmap.thecaregiversjourney.org/ Available as an interactive page on our website that walks you through the three stages of your dementia family caregiver journey. Includes the option to download the guide for free.

Takeaways

We shared 3 tips:

Tip 1: WOOP it up

Tip 2: Hone in on your wish

Tip 3: Make it work!

Read More in This Blog

https://thecaregiversjourney.org/61-turn-your-wishes-into-reality-three-essential-tips-alzheimers-and-other-dementias/

"While we can't reverse aging, regular mental activity — these exercises, regular cognitive engagement — helps keep cognitive skills stronger for longer. It's like exercising your body." — Dr. Daniel Fenton

What if you could make small changes and have more intentional conversations with your loved one that actively stimulate their brain? You're not doing one more thing — you're simply being more deliberate about conversations you're already having and sneaking in more benefits along the way.

We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer's and other types of dementia, we understand how meaningful it is to find ways to help our loved ones function at their best for longer. We're sharing insights about cognitive stimulation therapy (CST) from Dr. Daniel Fenton, head of neuropsychological services at New Days, a virtual clinic specializing in care for people with mild cognitive impairment and early-stage dementia.

Let's explore three essential tips for bringing cognitive stimulation therapy into your everyday conversations at home.

Connect with us and share your tips:

Website: https://thecaregiversjourney.org/
Donate: https://give.cornerstone.cc/thecaregiversjourney
Instagram: https://www.instagram.com/thecaregiversjourney/
Facebook: https://www.facebook.com/thecaregiversjourneys/
Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/
Email: [email protected], [email protected]

Full Show Notes

https://thecaregiversjourney.org/60-use-cognitive-simulation-therapy-at-home-three-essential-tips-alzheimers-and-other-dementias/

Additional Resources Mentioned

Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney
https://www.newdays.ai/
The Caregiver’s Journey Navigating Dementia Caregiving Roadmap: https://roadmap.thecaregiversjourney.org/ Available as an interactive page on our website that walks you through the three stages of your dementia family caregiver journey. Includes the option to download the guide for free.

Takeaways

We shared 3 tips:

Tip 1: Create A Simple Structure

Tip 2: Leverage These Types Of Activities

Tip 3: Don’t Forget To Wrap Up And Reflect

Read More in This Blog

https://thecaregiversjourney.org/60-three-tips-for-using-cognitive-stimulation-therapy-at-home/

As a family caregiver, you spend so much time worrying about your loved one's brain health. But what about your own? The good news is that there are real, evidence-backed steps you can take to improve your brain health and reduce your risk of cognitive decline — even in the midst of a demanding caregiving journey.

We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer's and other types of dementia, we know how easy it is to put yourself last. That's why we're sharing insights from Shelby Roberts, Senior Director of Public Health for the Alzheimer's Association, about protecting your brain health and reducing your risk of cognitive decline and dementia. We're sharing three tips.

Connect with us and share your tips:

Website: https://thecaregiversjourney.org/
Donate: https://give.cornerstone.cc/thecaregiversjourney
Instagram: https://www.instagram.com/thecaregiversjourney/
Facebook: https://www.facebook.com/thecaregiversjourneys/
Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/
Email: [email protected], [email protected]

Full Show Notes

https://thecaregiversjourney.org/59-protect-your-brain-health-three-essential-tips-alzheimers-and-other-dementias/

Additional Resources Mentioned

Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney
Alzheimer’s Association 24/7 Helpline: 800–272–3900. Masters-level counselors can help with crisis intervention, finding resources including support groups, and they offer interpretation in over 200 languages.
Alzheimer’s Association Brian Health Habit Builder: https://www.alz.org/help-support/brain_health/brain-health-habit-builder
Alzheimer's Association Brain Health Resources: https://www.alz.org/help-support/brain_health
The Caregiver’s Journey Navigating Dementia Caregiving Roadmap: https://roadmap.thecaregiversjourney.org/ Available as an interactive page on our website that walks you through the three stages of your dementia family caregiver journey. Includes the option to download the guide for free.

Takeaways

We shared 3 tips:

Tip 1: Learn about the 10 health habits for your brain 

Tip 2: Know yourself

Tip 3: Pick a place to start  

Read More in This Blog

https://thecaregiversjourney.org/59-protecting-your-brain-health-three-essential-tips-for-dementia-caregivers/

Have you ever heard of a certified senior advisor? Would you even know what you needed or how to find one? You're not alone if the answer is no — and there are clear steps you can take to get the right help at the right time.

We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer's and other types of dementia, we understand how overwhelming it can be to recognize when something has changed and know where to turn next. We're sharing insights from Cynthia Perthuis, principal owner of Senior Care Authority in Southwest Florida and a certified senior advisor, about finding, evaluating, and implementing solutions along the caregiving journey.

If you're following along with the Navigating Dementia Caregiving Roadmap, this aligns with Step Eight. You can find the roadmap as a downloadable digital guide on the guides page of our website, and we've also created it as an interactive page where you can click directly into each step.

Let's explore three essential tips for navigating this process — from recognizing when something is wrong, to finding the right help, to building a strategy that works for your whole family.

Connect with us and share your tips:

Website: https://thecaregiversjourney.org/
Donate: https://give.cornerstone.cc/thecaregiversjourney
Instagram: https://www.instagram.com/thecaregiversjourney/
Facebook: https://www.facebook.com/thecaregiversjourneys/
Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/
Email: [email protected], [email protected]

Full Show Notes

https://thecaregiversjourney.org/58-what-is-a-certified-senior-advisor-three-essential-tips-alzheimers-and-other-dementias/

Additional Resources Mentioned

Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney
Society of Senior Care Advisors:  https://www.csa.us/
Cynthia Perthuis: https://www.seniorcare-nyfl.com/eldercare-consultants-in-new-york-city-and-southwest-florida.html#about
The Caregiver’s Journey Navigating Dementia Caregiving Roadmap: https://roadmap.thecaregiversjourney.org/ Available as an interactive page on our website that walks you through the three stages of your dementia family caregiver journey. Includes the option to download the guide for free.

Takeaways

We shared 3 tips:

Tip 1: Evaluate your situation

Tip 2: Reach out for help

Tip 3: Create a strategy

Read More in This Blog

https://thecaregiversjourney.org/58-what-is-a-certified-senior-advisor-three-essential-tips-alzheimers-and-other-dementias-2/